Dystonia Nation ~ Resources
Where is the country of Dystonia? It's everywhere - on every continent, and among all peoples. Dystonians and their loved ones around the world are united in a common cause - to promote research and development of better treatment methods, and to support each other in addressing the challenges of this disease. Together, we are as one - Dystonia Nation.
Resources for Dystonia Research and Patient Support
A growing number of non-profit groups and individuals are organizing worldwide to promote dystonia research and offer support to those affected by the disease. On this page you will find links to many of these resources, and they can lead you to even more. You can click on the bulleted categories below for links in the areas of your interest, or simply scroll down the page.

If you know of an organization or other resource that should be included in our listings, please let us know! You can email us at the address given on our Contact page.

WE MOVE (Worldwide Education and Awareness for Movement Disorders)
WE MOVE maintains a comprehensive listing of links to international Dystonia patient advocacy groups and foundations. You can find this listing here.
Dystonia Coalition
Dystonia Study Group
European Dystonia Federation
US National: All Forms of Dystonia
American Dystonia Society (ADS)
Bachmann-Strauss Dystonia & Parkinson Foundation (BSDPF)
Care4Dystonia, Inc.
Dystonia Advocacy Network (DAN)
Dystonia Medical Research Foundation (DMRF)
US National: Focal Dystonias
Benign Essential Blepharospasm Research Foundation (BEBRF)
National Spasmodic Dysphonia Association (NSDA)
National Spasmodic Torticollis Association (NSTA)
ST/Dystonia, Inc. (Spasmodic Torticollis)
US National: Dopa Responsive Dystonia
Dopa Responsive Dystonia Central
US Local
Dystonia Support Organization of Connecticut
Dystonia Association of Kentucky
Online Support Forums
Dystonia Bulletin Board
Blepharospasm Bulletin Board
Musicians with Dystonia Bulletin Board
Spasmodic Dysphonia Bulletin Board
WEGO Health – Dystonia Forum
Yahoo Groups
DBS for Dystonia
DBS Surgery
Dystonia International
Dystonia Association of Kentucky
Dystonies (French)
Spasmodic Dysphonia


Dystonia Diary
Life with Dystonia / Beat Dystonia
Living with Generalized (Torsion) Dystonia
Quest of a Dystonic Buddhist Neuroscientist
Random and Sundry Things
Tyler’s Hope for a Dystonia Cure

Film / Video

Dystonia Deconstructed - ABC News
Demon Hands - Musicians with Focal Dystonia
Changing Keys - Billy McLaughlin and the Mystery of Dystonia
Twisted - Blind Dog Films