is the country of Dystonia? It's everywhere - on every continent, and
all peoples. Dystonians and their loved ones around the world are
in a common cause - to promote research and development of better
methods, and to support each other in addressing the challenges of this
disease. Together, we are as one - Dystonia Nation.
Dystonia is a
disabling neurological movement disorder that affects an estimated
people worldwide. It is characterized by sustained muscle spasms
that can cause twisting movements or abnormal postures, as well as
severe pain. While there is no known cure and treatment options are
research is underway to discover the causes of the disease, and to
better treatment methods. For further details about the various forms
dystonia, please visit our Information page.
In addition to
the many medical scientists and healthcare professionals who strive to
understand this disease and to assist those who are affected by it, a
number of non-profit organizations are dedicated to the cause of
dystonia research and supporting dystonians and their families. For
to these groups and to other helpful sources of information and
please visit our Resources page.
There are many
ways you can help. From volunteering to lead a local support group, to
organizing events in your community, to participating in research,
funds, or joining a media campaign - there is no reason to sit on the
when the internet connects us so easily, we have so much work to do.
contact the organizations listed on our Resources
page to learn
about opportunities for advancing our cause.
can you do?
If you want to
help spread the word about dystonia, you can find stylish
and other merchandise for sale in our online shop. All proceeds are
donated to organizations supporting dystonia research and services. Please click the Shop
link in the navigation bars to visit our store.
the word out!